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Sleep study! blood draws! echos! Oh my! . J’s health care needs are ticking up again and the last few weeks have been busy as we begin to schedule all the tests and things he needs to make sure he is as safe and as healthy as possible. . To keep everyone who asks updated, I’ve rebooted his Caring Bridge. I don’t know if that’s the best place to use any more, but we have a history there, so that’s where I’m updating for those who have asked. (LINK IN PROFILE) . Thank you to everyone who has asked, prayed and reached out these last few weeks as we’ve processed the news that J’s heart is just not as stable as we thought. As always, we are so buoyed by your love and support. . 📸 @helenjoygeorge
J’s team of doctors grew again today. And looks like it will continue to grow in the near future. I will try to fill in the details soon, but just wanted share that he is obviously the bravest, coolest kids you’ve ever seen. Even when he gets scopes unexpectedly stuck down his nose...😍 #coolasacucumber #jonnieswarriorheart
So, last week I had the privilege of writing and recording a short video for @mops_international to encourage their members. I’ve linked it in my profile and I hope you’ll go check it out and let me know if you did. . I will be honest that I was nervous as all get out to record and am the same to share. I’m struggling to not be hugely critical of myself, my words and my looks. And just to prove the point of my words, I dragged Hazel and Jonnie along with me to the recording because that’s just what worked that day. I’m a hot mess, but it’s out in the world, a small drop in the bucket of all the words put onto the internet every day. Yet, it’s me showing up in a small way for me and my community. I think I’ll stick to writing now though. 😂 . 📸 @helenjoygeorge
Leaving this on the fridge for the next time he drives me so crazy I want to lock myself in the bathroom and hide. 😂💛